GRACE UNDER PRESSURE!

Often times I wonder, what does “GRACE UNDER PRESSURE” mean.  Of course, the uniqueness of life doesn’t always include tragedy.  The uniqueness of life doesn’t mean that we are immune to the damage of others, nor does it mean that we can be so self-centered as to think that our pain is the only one that matters.  I know this, as I look back at the person I was “before”.

As many of you realize, when you say “before” you mean before your world was turned upside down and wrapped in pain.  And the platitudes of time heals all wounds, love conquers all and tomorrow’s another day are fine but never really create the feeling you need.   These platitudes then turn into a prison as tomorrow is another day – but one of pain in which you watch your loved one suffer. Hope becomes a burden that you try to use as a shield.  However, every shield becomes heavy after fighting and fighting, the most ardent warrior tires, weakens and prays for it to stop.

Sometimes, all you hold onto is with fingernails – as the famous image of the cat holding on with its claws. As it holds onto the edge of a ledge, ready to fall, but not willing to give up.  

And yes, we hold on and don’t give up.  And we find something to rebuild on.

Grace Under Pressure!

This week’s rebuild was done on the foundation of the song: GRACE by Rachel Platten.   I had it on in the background as I was helping Derya. I’m not ashamed of the emotion it evoked in me, as no one should be.  This song touched me as I am sure it will touch you.  Tears, sobs of pain and suffering wracking me as I held my beautiful daughter.  Throughout it all, her confused face of concern and worry.  “What’s wrong with dad?” her look suggested. 

Sometimes we need Grace, to be a better version of yourself.  The screaming going on in all of us because of the pain we suffer.  Sometimes, it cuts too deep. And the pain we suffer can only be shown through the tears that stream down our cheeks.  And when our faith wanes, our hope is feeling crushed and we know we can’t give up. We know we have no choice. We stand again, hoping we have the GRACE to be a better person tomorrow than we are today.  

Again, tragedy is not the monopoly of the one, but the experience of us all!

About US!

James Baldini blogs about his daughter’s care and the tragedy that has surrounded the entire family of Derya Demirtas.  Derya has had Autoimmune Encephalitis for nearly four years now.  The young advancing, brave and stalwart young woman Derya Demirtas, has suffered much throughout that time.  As has her family and friends.  In someway we hope to see a change within the medical community so that it may better adapt to this disease and prevent future generations of victims.

You can read more from James Baldini @  www.JamesBaldini.com

#FreeDerya #JamesBaldini